Albinism Up Close

An Up-Close Look at Albinism and Living

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  • An orange graphic with text that says Albinism Up Close, Internalized Ableism: When Society Doesn't Work. The corners feature triangles of blue and cream. The top also has the AUC logo
    Albinism,  Blindness & Visual Impairment,  Disability,  Everyday Life

    Internalized Ableism: When Society Doesn’t Work

    October 13, 2023 / 0 Comments

    Ableism is everywhere, including in our very own minds. It has a huge impact on every aspect of our lives, but you CAN change the way you think about disability, and you should!

    read more
  • a soft green image of a mobility cane has words on top that say Choosing a tip for your mobility cane. The Albinism Up Close logo and script is above the text.
    Blindness & Visual Impairment,  Low Vision Products

    Choosing a Tip for Your Mobility Cane

    October 3, 2022 / 0 Comments

    Choosing a tip for your mobility cane is a very personal task, but there are some guidelines that can help you make the decision. Here, I run through the various tips, their general uses, and some general guidelines to help you choose your next cane tip. Remember, I am absolutely no orientation & mobility expert. I am simple gathering all the information for you guys.

    read more
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabled
    Albinism,  Blindness & Visual Impairment,  Disability

    Why Are We Proud to be Disabled?

    July 18, 2022 / 0 Comments

    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person.

    read more
  • An image of Dani sitting on stairs with her head down features text: Feeling like a burden: Gaining independence & asking for help
    Albinism,  Blindness & Visual Impairment,  Everyday Life,  Mental Health

    Feeling Like a Burden: Gaining Independence & Asking for Help

    October 5, 2020 / 0 Comments

    Feeling like a burden often goes hand in hand with having a disability, but you are not alone. There are steps we can take to ease that feeling and gain back some of our sense of independence as well.

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  • a library features a graphic of a folded mobility cane and text: The white cane: History and Laws
    Blindness & Visual Impairment,  Low Vision Products,  Technology

    The White Cane: History & Laws

    August 13, 2020 / 1 Comment

    The white cane has a long history, but laws regulating its use and safety are fairly recent and vary by state. Here I discuss that history, laws, and the types of canes that exist for blind and visually impaired people.

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  • An image features two circles. One has text that says: Albinism up close Nystagmus explained: how it impacts the vision of those with albinism. The other circle is an up close view of a purple eye with white eye lashes and eyebrow.
    Albinism,  Blindness & Visual Impairment

    Nystagmus Explained: How it Impacts the Vision of Those with Albinism

    July 16, 2020 / 0 Comments

    Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.

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  • A photo of a fair skinned woman with white hair behind a microphone smiling. The photo includes text at the bottom that reads, "I was on a podcast: The low vision guy"
    Albinism,  Announcements,  Blindness & Visual Impairment

    I Was on a Podcast: The Low Vision Guy

    April 30, 2020 / 0 Comments

    I've admired podcasts and those who run them for years now. For the first time, I had the opportunity to be on a podcast. Introducing The Low Vision Guy and my episode of his podcast with links for you to listen on your favorite podcast players.

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  • A single candle in a dark room that features a white square with the words, "When hope for a cure becomes heartbreak: The journey to self-acceptance" inside.
    Albinism,  Everyday Life,  Mental Health

    When Hope for a Cure Becomes Heartbreak: The Journey to Self-Acceptance

    April 27, 2020 / 0 Comments

    Hope can keep us going when times are at their darkest, but in rare circumstances, hope can be detrimental to progress. Oh, how I know this truth well. I am a huge believer in hope; the eternal optimist most days. But, in this one case, hope broke my heart.

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  • A photo of a beach with a strong dark vignette with a white border and the words, "Photophobia: Recognizing it, challenging situations, & what you can do about it"
    Albinism,  Blindness & Visual Impairment,  Everyday Life

    Photophobia: Recognizing It, Challenging Situations, & What You Can Do About It

    April 11, 2020 / 1 Comment

    A full rundown of photophobia, recognizing it in children, situations in which it can be challenging, and what you can do about it.

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  • Dani sits on the left side holding onto a rope. The right side of the photo features a pink background with white text that reads, "My worst fears after beginning albinism up close"
    Albinism,  Blindness & Visual Impairment

    My Worst Fears After Beginning Albinism Up Close

    March 15, 2020 / 0 Comments

    I had so many fears after beginning this project and coming out as blind, but I'm learning to conquer those fears along the way. I hope my journey can inspire yours.

    read more
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Recent Posts

  • a photo of sunglasses on a beach features blue traingles in the top left and bottom right corner and text that says: Transition Lenses: Are they dark enough? The AUC logo is in the bottom left.a photo of sunglasses on a beach features blue traingles in the top left and bottom right corner and text that says: Transition Lenses: Are they dark enough? The AUC logo is in the bottom left.Transition Lenses: Are They Dark Enough?
    In Albinism, Blindness & Visual Impairment, Low Vision Products
    June 12, 2024
    I finally picked up some Transitions lenses, but what are they and how to they fit my needs? Read on to learn my thoughts on these fun science-y glasses. […]
  • text against a black and white controller photo says Do Accessibility Features Make games... Too easy? The Albinism Up Close logo and text is at the toptext against a black and white controller photo says Do Accessibility Features Make games... Too easy? The Albinism Up Close logo and text is at the topDo Accessibility Features Make Games Too Easy?
    In Blindness & Visual Impairment, Disability, Gaming, Technology
    December 13, 2023
    Do game accessibility features make games too easy? These features actually benefit those with and without disabilities. Read on to find out how! […]
  • An orange graphic with text that says Albinism Up Close, Internalized Ableism: When Society Doesn't Work. The corners feature triangles of blue and cream. The top also has the AUC logoAn orange graphic with text that says Albinism Up Close, Internalized Ableism: When Society Doesn't Work. The corners feature triangles of blue and cream. The top also has the AUC logoInternalized Ableism: When Society Doesn’t Work
    In Albinism, Blindness & Visual Impairment, Disability, Everyday Life
    October 13, 2023
    Ableism is everywhere, including in our very own minds. It has a huge impact on every aspect of our lives, but you CAN change the way you think about disability, and you should! […]
  • a soft green image of a mobility cane has words on top that say Choosing a tip for your mobility cane. The Albinism Up Close logo and script is above the text.a soft green image of a mobility cane has words on top that say Choosing a tip for your mobility cane. The Albinism Up Close logo and script is above the text.Choosing a Tip for Your Mobility Cane
    In Blindness & Visual Impairment, Low Vision Products
    October 3, 2022
    Choosing a tip for your mobility cane is a very personal task, but there are some guidelines that can help you make the decision. Here, I run through the various tips, their general uses, and some general guidelines to help you choose your next cane tip. Remember, I am absolutely no orientation & mobility expert. I am simple gathering all the information for you guys. […]
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disableda grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabledWhy Are We Proud to be Disabled?
    In Albinism, Blindness & Visual Impairment, Disability
    July 18, 2022
    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person. […]
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