Albinism Up Close

An Up-Close Look at Albinism and Living

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  • a photo of sunglasses on a beach features blue traingles in the top left and bottom right corner and text that says: Transition Lenses: Are they dark enough? The AUC logo is in the bottom left.
    Albinism,  Blindness & Visual Impairment,  Low Vision Products

    Transition Lenses: Are They Dark Enough?

    June 12, 2024 / 0 Comments

    I finally picked up some Transitions lenses, but what are they and how to they fit my needs? Read on to learn my thoughts on these fun science-y glasses.

    read more
  • An orange graphic with text that says Albinism Up Close, Internalized Ableism: When Society Doesn't Work. The corners feature triangles of blue and cream. The top also has the AUC logo
    Albinism,  Blindness & Visual Impairment,  Disability,  Everyday Life

    Internalized Ableism: When Society Doesn’t Work

    October 13, 2023 / 0 Comments

    Ableism is everywhere, including in our very own minds. It has a huge impact on every aspect of our lives, but you CAN change the way you think about disability, and you should!

    read more
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabled
    Albinism,  Blindness & Visual Impairment,  Disability

    Why Are We Proud to be Disabled?

    July 18, 2022 / 0 Comments

    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person.

    read more
  • a see of colorful umbrellas features text: Albinism up close. Numberous sunscreens found to contain the carcinogen benzene
    Albinism,  Hair & Beauty

    Numerous Sunscreens Found to Contain the Carcinogen Benzene

    May 26, 2021 / 0 Comments

    A new study has found 78 sun protection and after sun products that contain benzene, a known carcinogen. Here, you can find the summary of those finding, resource links, and a list of contaminated products.

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  • A purple background features a photo of Dani smiling with several foundation bottles in her hands. Text reads: albinism & makeup: The challenges of choosing a foundation
    Albinism,  Hair & Beauty

    Albinism & Makeup: The Challenges of Choosing a Foundation

    March 29, 2021 / 2 Comments

    Choosing a foundation for fair skin can be a challenging task for many different reasons. Choosing a foundation for your skin is already a challenge. Let's find out why.

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  • a black image with a double helix features text: Ocular Albinism: X-Linked and what that means
    Albinism,  Blindness & Visual Impairment

    Ocular Albinism: X-Linked & What That Means

    September 18, 2020 / 2 Comments

    Ocular Albinism is an x-linked variant of albinism. Here, I'll detail what that means in simple terms and how it may affect your diagnosis. I also share some important notes about accepting others' differences.

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  • A collage of four images and text that reads Surviving the Beach with albinism. Images feature Dani with sunglasses and a large hat, a beach hat on a deck, Dani with the ocean behind her, and a sunset on a beach
    Albinism,  Everyday Life,  Hair & Beauty

    Surviving the Beach with Albinism

    July 30, 2020 / 0 Comments

    People with albinism can enjoy the beach as well as people without it, but we do need to take a few more precautions. Here, I run down some of those considerations and tips so that you can enjoy your time at the beach with albinism, fair skin, and photophobia.

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  • a graphic features a photo of Phoenix with one arm on her hip and the other under her chin. Text around it reads Community Highlights: Phoenix Simone Walter. Rising Proudly. on Albinism Up Close
    Community Highlights

    Phoenix Simone Walter: Rising Proudly

    July 23, 2020 / 0 Comments

    Phoenix Simone Walter is a photographer and graphic designer who also happens to have albinism. She rises above any challenges that come her way with grace.

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  • An image features two circles. One has text that says: Albinism up close Nystagmus explained: how it impacts the vision of those with albinism. The other circle is an up close view of a purple eye with white eye lashes and eyebrow.
    Albinism,  Blindness & Visual Impairment

    Nystagmus Explained: How it Impacts the Vision of Those with Albinism

    July 16, 2020 / 0 Comments

    Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.

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  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 3 & 4.
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 3 & 4

    July 13, 2020 / 0 Comments

    The NOAH Virtual Conference 2020 was an absolutely amazing experience for me. This post covers Days 3 & 4 as well as where the 2022 and 2024 conferences will be held.

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Recent Posts

  • a photo of sunglasses on a beach features blue traingles in the top left and bottom right corner and text that says: Transition Lenses: Are they dark enough? The AUC logo is in the bottom left.a photo of sunglasses on a beach features blue traingles in the top left and bottom right corner and text that says: Transition Lenses: Are they dark enough? The AUC logo is in the bottom left.Transition Lenses: Are They Dark Enough?
    In Albinism, Blindness & Visual Impairment, Low Vision Products
    June 12, 2024
    I finally picked up some Transitions lenses, but what are they and how to they fit my needs? Read on to learn my thoughts on these fun science-y glasses. […]
  • text against a black and white controller photo says Do Accessibility Features Make games... Too easy? The Albinism Up Close logo and text is at the toptext against a black and white controller photo says Do Accessibility Features Make games... Too easy? The Albinism Up Close logo and text is at the topDo Accessibility Features Make Games Too Easy?
    In Blindness & Visual Impairment, Disability, Gaming, Technology
    December 13, 2023
    Do game accessibility features make games too easy? These features actually benefit those with and without disabilities. Read on to find out how! […]
  • An orange graphic with text that says Albinism Up Close, Internalized Ableism: When Society Doesn't Work. The corners feature triangles of blue and cream. The top also has the AUC logoAn orange graphic with text that says Albinism Up Close, Internalized Ableism: When Society Doesn't Work. The corners feature triangles of blue and cream. The top also has the AUC logoInternalized Ableism: When Society Doesn’t Work
    In Albinism, Blindness & Visual Impairment, Disability, Everyday Life
    October 13, 2023
    Ableism is everywhere, including in our very own minds. It has a huge impact on every aspect of our lives, but you CAN change the way you think about disability, and you should! […]
  • a soft green image of a mobility cane has words on top that say Choosing a tip for your mobility cane. The Albinism Up Close logo and script is above the text.a soft green image of a mobility cane has words on top that say Choosing a tip for your mobility cane. The Albinism Up Close logo and script is above the text.Choosing a Tip for Your Mobility Cane
    In Blindness & Visual Impairment, Low Vision Products
    October 3, 2022
    Choosing a tip for your mobility cane is a very personal task, but there are some guidelines that can help you make the decision. Here, I run through the various tips, their general uses, and some general guidelines to help you choose your next cane tip. Remember, I am absolutely no orientation & mobility expert. I am simple gathering all the information for you guys. […]
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disableda grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabledWhy Are We Proud to be Disabled?
    In Albinism, Blindness & Visual Impairment, Disability
    July 18, 2022
    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person. […]
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