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Albinism Up Close

An Up-Close Look at Albinism and Living

Albinism Up Close
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    • Albinism
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    • NOAH Conference
    • Technology
      • Gaming
      • Low Vision Products
    • Student Life
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  • Helpful Sites
  • About
  • Home
  • Blog
    • Albinism
    • Blindness & Visual Impairment
    • Community Highlights
    • Hair & Beauty
    • NOAH Conference
    • Technology
      • Gaming
      • Low Vision Products
    • Student Life
    • Mental Health
  • Helpful Sites
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  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabled
    Albinism,  Blindness & Visual Impairment

    Why Are We Proud to be Disabled?

    July 18, 2022 /

    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person.

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    0 Comments
  • a see of colorful umbrellas features text: Albinism up close. Numberous sunscreens found to contain the carcinogen benzene
    Albinism,  Hair & Beauty

    Numerous Sunscreens Found to Contain the Carcinogen Benzene

    May 26, 2021 /

    A new study has found 78 sun protection and after sun products that contain benzene, a known carcinogen. Here, you can find the summary of those finding, resource links, and a list of contaminated products.

    read more
    0 Comments
  • A purple background features a photo of Dani smiling with several foundation bottles in her hands. Text reads: albinism & makeup: The challenges of choosing a foundation
    Albinism,  Hair & Beauty

    Albinism & Makeup: The Challenges of Choosing a Foundation

    March 29, 2021 /

    Choosing a foundation for fair skin can be a challenging task for many different reasons. Choosing a foundation for your skin is already a challenge. Let's find out why.

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    2 Comments
  • a black image with a double helix features text: Ocular Albinism: X-Linked and what that means
    Albinism,  Blindness & Visual Impairment

    Ocular Albinism: X-Linked & What That Means

    September 18, 2020 /

    Ocular Albinism is an x-linked variant of albinism. Here, I'll detail what that means in simple terms and how it may affect your diagnosis. I also share some important notes about accepting others' differences.

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    2 Comments
  • A collage of four images and text that reads Surviving the Beach with albinism. Images feature Dani with sunglasses and a large hat, a beach hat on a deck, Dani with the ocean behind her, and a sunset on a beach
    Albinism,  Everyday Life,  Hair & Beauty

    Surviving the Beach with Albinism

    July 30, 2020 /

    People with albinism can enjoy the beach as well as people without it, but we do need to take a few more precautions. Here, I run down some of those considerations and tips so that you can enjoy your time at the beach with albinism, fair skin, and photophobia.

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    0 Comments
  • a graphic features a photo of Phoenix with one arm on her hip and the other under her chin. Text around it reads Community Highlights: Phoenix Simone Walter. Rising Proudly. on Albinism Up Close
    Community Highlights

    Phoenix Simone Walter: Rising Proudly

    July 23, 2020 /

    Phoenix Simone Walter is a photographer and graphic designer who also happens to have albinism. She rises above any challenges that come her way with grace.

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  • An image features two circles. One has text that says: Albinism up close Nystagmus explained: how it impacts the vision of those with albinism. The other circle is an up close view of a purple eye with white eye lashes and eyebrow.
    Albinism,  Blindness & Visual Impairment

    Nystagmus Explained: How it Impacts the Vision of Those with Albinism

    July 16, 2020 /

    Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.

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  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 3 & 4.
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 3 & 4

    July 13, 2020 /

    The NOAH Virtual Conference 2020 was an absolutely amazing experience for me. This post covers Days 3 & 4 as well as where the 2022 and 2024 conferences will be held.

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  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 2
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 2

    July 11, 2020 /

    The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the second day's events.

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    2 Comments
  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 1
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 1

    July 10, 2020 /

    The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the first day's events.

    read more
    0 Comments
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Recent Posts

  • Image featuring a cane with a roller ball tip and text: Albinism Up Close. Choosing a tip for your mobility caneChoosing a Tip for Your Mobility Cane
    In Blindness & Visual Impairment, Low Vision Products
    October 3, 2022
    Choosing a tip for your mobility cane is a very personal task, but there are some guidelines that can help you make the decision. Here, I run through the various tips, their general uses, and some general guidelines to help you choose your next cane tip. Remember, I am absolutely no orientation & mobility expert. I am simple gathering all the information for you guys. […]
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabledWhy Are We Proud to be Disabled?
    In Albinism, Blindness & Visual Impairment
    July 18, 2022
    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person. […]
  • The top of this image reads Quests of the Braille playing Electric Bastionland, Thursday, 20th of January 2022 at 5:30PM Eastern Standard Time. Below there are pictures of Dani Marie, Sightless Combat, Blind Temple and Jim O’Donnell. The Twitter handles for each person are @SightlessKombat @ DaniMarieAUC @Blind Temple @BrailleKnights the picture shows the location for the stream as WWW.Twitch.TV/BrailleKnightsLive Streamed TableTop RPG with Blind Creators: Let’s Have Some Awareness & Some Fun
    In Announcements, Blindness & Visual Impairment, Gaming
    January 16, 2022
    Join me in a live streamed TableTop RPG for charity and awareness beginning January 20th! Learn all about this event and how you can lend your support! […]
  • An image features a sunscreen bottle against a persons hip. Text says: Albinism Up Close. Johnson and johnson issue voluntary recall on sunscreensJohnson and Johnson Issue Voluntary Recall on Sunscreens
    In Albinism, Everyday Life, Hair & Beauty
    July 28, 2021
    Johnson and Johnson issues voluntary recall of certain aerosol sun protection products that contain benzene. […]
  • a see of colorful umbrellas features text: Albinism up close. Numberous sunscreens found to contain the carcinogen benzeneNumerous Sunscreens Found to Contain the Carcinogen Benzene
    In Albinism, Hair & Beauty
    May 26, 2021
    A new study has found 78 sun protection and after sun products that contain benzene, a known carcinogen. Here, you can find the summary of those finding, resource links, and a list of contaminated products. […]

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