The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the second day's events.
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the first day's events.
Those of us with albinism need to vigilant about sunscreen application. Here, I'll outline some factors that will help you choose the best sunscreen for you and your family and application tips.
Community Highlight: Kayla Flanary is a twenty-seven year old woman with Oculocutaneous albinism. She has faced many struggles including bullying, but she is finding joy now in the midst of the struggle.
I love my white hair, but it can be a challenge to keep white. Environmental factors can lead to yellowing of the hair, but there are steps you can take to prevent and reverse this effect.
Albinism is a genetic condition with various types and symptoms. In this post, I detail the hair and skin color variations along with the eye conditions that come with albinism. I also describe how I see.
Community Highlights are coming to Albinism Up Close. These are my plans, submission requirements, and contact information. Please, contact me if you'd like to be featured.
I've admired podcasts and those who run them for years now. For the first time, I had the opportunity to be on a podcast. Introducing The Low Vision Guy and my episode of his podcast with links for you to listen on your favorite podcast players.
Hope can keep us going when times are at their darkest, but in rare circumstances, hope can be detrimental to progress. Oh, how I know this truth well. I am a huge believer in hope; the eternal optimist most days. But, in this one case, hope broke my heart.
A full rundown of photophobia, recognizing it in children, situations in which it can be challenging, and what you can do about it.