Helpful Sites

I’ve compiled a list of helpful links for research, community, and insight. The list will continue to grow. If you have any links that you would like to suggest, please feel free to contact me at info@albinismupclose.com.

Organizations Relating to Albinism

NOAH (The National Organism for Albinism and Hypopigmentation)

An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.

Albinism Fellowship – UK and Ireland

This is a volunteer run group that supports people with albinism throughout the United Kingdom and Ireland.

The Albino Foundation

This foundation is an advocacy group that seeks to bring awareness for people with albinism in Nigeria and worldwide.

Groups Supporting the Blind or Visually Impaired Community

Lighthouse for the Blind, Inc.

A USA based organization that lists its mission as follows: We empower people who are blind, DeafBlind, and blind with other disabilities by creating diverse, sustainable, and meaningful employment opportunities.

American Foundation for the Blind

This group works to advocate for individuals with vision loss. They also publish original research in their own peer-reviewed journal called Journal of VIsual Impairment & Blindness.

Council of Citizens with Low Vision International

This group provides support and advocacy for those with low vision outside the US.

NFB (National Federation of the Blind)

The National Federation of the Blind is the leading force in the blindness field today, has 50000 members, 700 local chapters, 52 affiliates.

Informational Resources

The Americans with Disabilities Act (ADA)

This site outlines the Americans with Disabilities Act (ACA) and describes in detail what it means for public services, businesses, and every other organization to which its regulations apply.

Helping Students with Visual Impairments

Lend EDU has a fairly thorough resource page for prospective and current college students including basic information, tools, and scholarships for people with visual impairments.

Optometrists Network

A very helpful site including information for teachers, therapists, parents, and patients.

LowVision.com

Their mission is to improve quality of life for those who are visually impaired through awareness, resources, and solutions.

All About Vision – Refractive Errors

This site has a very nice explanation on how eyes work and information about the various refractive errors of the eye.

Optometrists Network – Lazy Eye

A wonderful description of Amblyopia (Lazy Eye), causes, diagnosis, treatments, and a nice section on Lazy Eye vs Crossed Eyes.

The Vision of Children Foundation: Ocular Albinism

Easy to understand information on Ocular and Oculocutaneous Albinism. This website appears to have a solid collection of information about vision diagnoses.

Vision Center

Vision Center is a digital guide on various eye conditions, glasses, contacts, LASIK, and more. Information is provided by medical professionals, editors, and journalists.

Access to Reading for the Blind and Visually Impaired

National Federation of the Blind – DAISY
DAISY.org

Some information about the Digital Accessible Information System (DAISY) initiative that hopes to set a standard for audio book formats for the visually impaired and print disabled.

National Library Service (NLS)

National Library Service (NLS) is a free braille and talking book library service for people with temporary or permanent low vision, blindness, or a physical, perceptual, or reading disability that prevents them from using regular print materials. Through a national network of cooperating libraries, NLS circulates books and magazines in braille or audio formats, that are instantly downloadable to a personal device or delivered by mail free of charge.

BookShare

This website provides e-books to those with barriers to reading including blindness and low vision, dyslexia, cerebral palsy, and others. When applying, you do need to provide documentation of your barrier, but this can include a vocational counselor, doctor, vision teacher, dyslexia counselor, etc. The service is free to students but otherwise costs $50 per year. Once you download the books, you can import them into your favorite reader apps.

Paths to Literacy

Here this organization links to numerous free sources of Braille books.

Education and Training Resources

Deque University Scholarships for People with Disabilities

If you have a disability, you qualify for a scholarship to access Deque’s in-depth web accessibility curriculum for a full year (normally a $315 cost). Courses include: Accessibility Fundamentals, Designing an Accessible User Experience, Basic Web and Document Accessibility for Content Contributors, and more.

Best Trade Schools

This website offers resources for finding a trade school that will fit your needs. Trades include business, computer and information technology, HVAC maintenance, healthcare administration, and more.

Products and Aids:

Ambutech

This site has products related to mobility such as white canes and cane accessories. They have a huge variety available and a solid FAQ section with answers to questions such as, “how do I choose a cane length,” or “why do some cane tips roll and some do not?” This is where many community members and I purchase our custom colored mobility canes from.

MaxiAids

This site has items for all kinds of disabilities: visual impairments, hearing impairments, ambulatory issues, etc. They have everything from electronics, home items, computer accessories, low vision notebooks and pens, canes and crutches, and more.

LS&S (Learning Sight & Sound)

LS&S specializes in products for the blind, visually impaired, deaf, and hard of hearing. Here you will find a great collection of low vision aids, hearing helpers, daily living aids, and information designed to help you or a loved one regain independence.

The Low Vision Store

This site appears to have a good variety of low vision aids in every category you can imagine. They appear to be based out of Minnesota, USA.

Other Blogs, Podcasts, and Channels

Low Vision Moments Podcast

A mostly light-hearted podcast hosted by another wonderful person with albinism. Described on their website as follows: “Part story time, part comedy, part awareness driven, Jennie Bovard presents funny experiences that happen when you are blind or partially sighted.”

Rare with Flare Podcast

A podcast hosted by friends Casey and Cassandra who both happen to have the same rare condition called Hermansky-Pudlak Syndrome (HPS). They talk about their fun adventures and try to bring awareness to HPS and living with a visual impairment.

Nine to Freedom

An up and coming blog and wonderful resource about bioptic driving. This blog is also owned and operated by a close friend of mine with albinism. He will be chronicling his journey into bioptic training and driving in New York state.