Albinism
These posts cover albinism and the experiences that result from this condition's symptoms. They can focus on topics such as the condition itself, hair and skin care, vision, and every day life with albinism.
NOAH Virtual Conference 2020: Day 1
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the first day's events.
Sunscreen: How to Choose the Right Sunscreen & Apply It Properly
Those of us with albinism need to vigilant about sunscreen application. Here, I'll outline some factors that will help you choose the best sunscreen for you and your family and application tips.
Albinism & Platinum Hair: Keeping White Hair White
I love my white hair, but it can be a challenge to keep white. Environmental factors can lead to yellowing of the hair, but there are steps you can take to prevent and reverse this effect.
Albinism: What is it & What do I See?
Albinism is a genetic condition with various types and symptoms. In this post, I detail the hair and skin color variations along with the eye conditions that come with albinism. I also describe how I see.
I Was on a Podcast: The Low Vision Guy
I've admired podcasts and those who run them for years now. For the first time, I had the opportunity to be on a podcast. Introducing The Low Vision Guy and my episode of his podcast with links for you to listen on your favorite podcast players.
When Hope for a Cure Becomes Heartbreak: The Journey to Self-Acceptance
Hope can keep us going when times are at their darkest, but in rare circumstances, hope can be detrimental to progress. Oh, how I know this truth well. I am a huge believer in hope; the eternal optimist most days. But, in this one case, hope broke my heart.
Photophobia: Recognizing It, Challenging Situations, & What You Can Do About It
A full rundown of photophobia, recognizing it in children, situations in which it can be challenging, and what you can do about it.
My Worst Fears After Beginning Albinism Up Close
I had so many fears after beginning this project and coming out as blind, but I'm learning to conquer those fears along the way. I hope my journey can inspire yours.
Coming Out as Blind: Embracing the Label Not the Limitations
I've felt trapped between the normally sighted and blind communities for most of my life. I've built my own barriers in the past, but now I aim to tear them all down one by one.
Albinism, Platinum Hair, and Dye, Part Two: What You Can Learn from My Trial and Error
In part two of this two part series, I share my tips and tricks for having healthy hair and lasting dye. Be sure to check out part one as well!
