Albinism
These posts cover albinism and the experiences that result from this condition's symptoms. They can focus on topics such as the condition itself, hair and skin care, vision, and every day life with albinism.
Feeling Like a Burden: Gaining Independence & Asking for Help
Feeling like a burden often goes hand in hand with having a disability, but you are not alone. There are steps we can take to ease that feeling and gain back some of our sense of independence as well.
Ocular Albinism: X-Linked & What That Means
Ocular Albinism is an x-linked variant of albinism. Here, I'll detail what that means in simple terms and how it may affect your diagnosis. I also share some important notes about accepting others' differences.
Surviving the Beach with Albinism
People with albinism can enjoy the beach as well as people without it, but we do need to take a few more precautions. Here, I run down some of those considerations and tips so that you can enjoy your time at the beach with albinism, fair skin, and photophobia.
Nystagmus Explained: How it Impacts the Vision of Those with Albinism
Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.
NOAH Virtual Conference 2020: Day 3 & 4
The NOAH Virtual Conference 2020 was an absolutely amazing experience for me. This post covers Days 3 & 4 as well as where the 2022 and 2024 conferences will be held.
NOAH Virtual Conference 2020: Day 2
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the second day's events.
NOAH Virtual Conference 2020: Day 1
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the first day's events.
Sunscreen: How to Choose the Right Sunscreen & Apply It Properly
Those of us with albinism need to vigilant about sunscreen application. Here, I'll outline some factors that will help you choose the best sunscreen for you and your family and application tips.
Albinism & Platinum Hair: Keeping White Hair White
I love my white hair, but it can be a challenge to keep white. Environmental factors can lead to yellowing of the hair, but there are steps you can take to prevent and reverse this effect.
Albinism: What is it & What do I See?
Albinism is a genetic condition with various types and symptoms. In this post, I detail the hair and skin color variations along with the eye conditions that come with albinism. I also describe how I see.
