Albinism
These posts cover albinism and the experiences that result from this condition's symptoms. They can focus on topics such as the condition itself, hair and skin care, vision, and every day life with albinism.
Why Are We Proud to be Disabled?
July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person.
Johnson and Johnson Issue Voluntary Recall on Sunscreens
Johnson and Johnson issues voluntary recall of certain aerosol sun protection products that contain benzene.
Numerous Sunscreens Found to Contain the Carcinogen Benzene
A new study has found 78 sun protection and after sun products that contain benzene, a known carcinogen. Here, you can find the summary of those finding, resource links, and a list of contaminated products.
Albinism & Makeup: The Challenges of Choosing a Foundation
Choosing a foundation for fair skin can be a challenging task for many different reasons. Choosing a foundation for your skin is already a challenge. Let's find out why.
Feeling Like a Burden: Gaining Independence & Asking for Help
Feeling like a burden often goes hand in hand with having a disability, but you are not alone. There are steps we can take to ease that feeling and gain back some of our sense of independence as well.
Ocular Albinism: X-Linked & What That Means
Ocular Albinism is an x-linked variant of albinism. Here, I'll detail what that means in simple terms and how it may affect your diagnosis. I also share some important notes about accepting others' differences.
Surviving the Beach with Albinism
People with albinism can enjoy the beach as well as people without it, but we do need to take a few more precautions. Here, I run down some of those considerations and tips so that you can enjoy your time at the beach with albinism, fair skin, and photophobia.
Nystagmus Explained: How it Impacts the Vision of Those with Albinism
Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.
NOAH Virtual Conference 2020: Day 3 & 4
The NOAH Virtual Conference 2020 was an absolutely amazing experience for me. This post covers Days 3 & 4 as well as where the 2022 and 2024 conferences will be held.
NOAH Virtual Conference 2020: Day 2
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the second day's events.
