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Albinism Up Close

An Up-Close Look at Albinism and Living

Albinism Up Close
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  • Home
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    • Albinism
    • Blindness & Visual Impairment
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    • Technology
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  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 3 & 4.
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 3 & 4

    July 13, 2020 /

    The NOAH Virtual Conference 2020 was an absolutely amazing experience for me. This post covers Days 3 & 4 as well as where the 2022 and 2024 conferences will be held.

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    0 Comments
  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 2
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 2

    July 11, 2020 /

    The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the second day's events.

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    2 Comments
  • a bright orange and yellow graphic features a logo with an orange and a ribbon that says Virtual NOAH Con 2020. July 9 - 12, 2020. A Vision Beyond 2020. National Organization for Albinism and Hypopigmentation Virtual Conference 2020. July 9 - 12. Day 1
    Albinism,  NOAH Conference

    NOAH Virtual Conference 2020: Day 1

    July 10, 2020 /

    The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the first day's events.

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    0 Comments
  • floating umbrellas in various colors features text: Sunscreen. How to choose the right sunscreen and apply it properly
    Albinism,  Everyday Life,  Hair & Beauty

    Sunscreen: How to Choose the Right Sunscreen & Apply It Properly

    July 2, 2020 /

    Those of us with albinism need to vigilant about sunscreen application. Here, I'll outline some factors that will help you choose the best sunscreen for you and your family and application tips.

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    0 Comments
  • an image in soft blue and pink feature a white square with text: Community Highlights. Kayla Flanary. Finding joy after the struggle. On Albinism Up Close. A photo features a woman with dark hair, makeup, and a dark top
    Community Highlights

    Kayla Flanary: Finding Joy After the Struggle

    June 25, 2020 /

    Community Highlight: Kayla Flanary is a twenty-seven year old woman with Oculocutaneous albinism. She has faced many struggles including bullying, but she is finding joy now in the midst of the struggle.

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    0 Comments
  • a black background features a woman with white hair, fair skin, and glasses. Text says Albinism and platinum hair. Keeping white hair white
    Albinism,  Hair & Beauty

    Albinism & Platinum Hair: Keeping White Hair White

    June 18, 2020 /

    I love my white hair, but it can be a challenge to keep white. Environmental factors can lead to yellowing of the hair, but there are steps you can take to prevent and reverse this effect.

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    1 Comment
  • an image of a fair skinned woman with white curly hair with purple tips features a pink rectangle with text: Albinism what is it and what do i see
    Albinism,  Blindness & Visual Impairment

    Albinism: What is it & What do I See?

    June 13, 2020 /

    Albinism is a genetic condition with various types and symptoms. In this post, I detail the hair and skin color variations along with the eye conditions that come with albinism. I also describe how I see.

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    4 Comments
  • an image is half white rectangle and half of a photo featuring a canon camera with a mic mounted on top. Text on the white side says Youtube. Setup, shooting, and editing as a legally blind person
    Announcements,  Blindness & Visual Impairment,  Technology

    YouTube: Setup, Shooting, & Editing as a Legally Blind Person

    June 4, 2020 /

    I began a YouTube channel in early May. Here are the tools I'm using and how I'm making it work with a visual impairment.

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    0 Comments
  • This photo features multiple hands with palms facing upwards and a large heart shape painted in red on the palms. It features the words, "Introducing: Community Highlights on Albinism Up Close" in white.
    Community Highlights

    Introducing: Community Highlights on Albinism Up Close

    June 3, 2020 /

    Community Highlights are coming to Albinism Up Close. These are my plans, submission requirements, and contact information. Please, contact me if you'd like to be featured.

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  • A stone path with plants surrounding it with a glass roof and walls. It includes a white border and the text "Hoping for more after covid-19: Finding the good in the bad"
    Everyday Life

    Hoping for More After Covid-19: Finding the Good in the Bad

    May 21, 2020 /

    Covid-19 has affected every part of the world in so many negative ways, but there is hope for better after this is over. I'm hoping for some positive changes.

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  • Image featuring a cane with a roller ball tip and text: Albinism Up Close. Choosing a tip for your mobility caneChoosing a Tip for Your Mobility Cane
    In Blindness & Visual Impairment, Low Vision Products
    October 3, 2022
    Choosing a tip for your mobility cane is a very personal task, but there are some guidelines that can help you make the decision. Here, I run through the various tips, their general uses, and some general guidelines to help you choose your next cane tip. Remember, I am absolutely no orientation & mobility expert. I am simple gathering all the information for you guys. […]
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabledWhy Are We Proud to be Disabled?
    In Albinism, Blindness & Visual Impairment
    July 18, 2022
    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person. […]
  • The top of this image reads Quests of the Braille playing Electric Bastionland, Thursday, 20th of January 2022 at 5:30PM Eastern Standard Time. Below there are pictures of Dani Marie, Sightless Combat, Blind Temple and Jim O’Donnell. The Twitter handles for each person are @SightlessKombat @ DaniMarieAUC @Blind Temple @BrailleKnights the picture shows the location for the stream as WWW.Twitch.TV/BrailleKnightsLive Streamed TableTop RPG with Blind Creators: Let’s Have Some Awareness & Some Fun
    In Announcements, Blindness & Visual Impairment, Gaming
    January 16, 2022
    Join me in a live streamed TableTop RPG for charity and awareness beginning January 20th! Learn all about this event and how you can lend your support! […]
  • An image features a sunscreen bottle against a persons hip. Text says: Albinism Up Close. Johnson and johnson issue voluntary recall on sunscreensJohnson and Johnson Issue Voluntary Recall on Sunscreens
    In Albinism, Everyday Life, Hair & Beauty
    July 28, 2021
    Johnson and Johnson issues voluntary recall of certain aerosol sun protection products that contain benzene. […]
  • a see of colorful umbrellas features text: Albinism up close. Numberous sunscreens found to contain the carcinogen benzeneNumerous Sunscreens Found to Contain the Carcinogen Benzene
    In Albinism, Hair & Beauty
    May 26, 2021
    A new study has found 78 sun protection and after sun products that contain benzene, a known carcinogen. Here, you can find the summary of those finding, resource links, and a list of contaminated products. […]

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