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Albinism Up Close

An Up-Close Look at Albinism and Living

Albinism Up Close
  • Home
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    • Albinism
    • Blindness & Visual Impairment
    • Community Highlights
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    • NOAH Conference
    • Technology
      • Gaming
      • Low Vision Products
    • Student Life
    • Mental Health
  • Helpful Sites
  • About
  • Home
  • Blog
    • Albinism
    • Blindness & Visual Impairment
    • Community Highlights
    • Hair & Beauty
    • NOAH Conference
    • Technology
      • Gaming
      • Low Vision Products
    • Student Life
    • Mental Health
  • Helpful Sites
  • About
  • A photo of a house features text in front of it that says Moving: Planning, Organizing, & More. Albinism Up Close
    Blindness & Visual Impairment,  Everyday Life,  Mental Health

    Moving: Planning, Packing, Organizing, & More

    December 7, 2020 /

    With my recent move, I have learned so much and experienced so many new things including mountains of stress. Here is an update of how that move has gone and what is to come in the future.

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  • Announcements,  Everyday Life

    The Trials of Moving

    November 17, 2020 /

    Here is a brief update about the progress of my move and a bit about why I've been absent. You can look forward to future posts of all kinds!

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  • A blue, purple, and white mobility cane is folded on a wooden porch with a roller ball and marshmallow tip in front. Text reads: Choosing a white cane: Style & Material. Albinism up close
    Blindness & Visual Impairment,  Low Vision Products,  Technology

    Choosing a White Cane: Style & Material

    October 12, 2020 /

    Today's mobility canes have so many options for materials, styles, tips, handles, and more. Choosing the one that is right for you is based on your preferences, experiences, and style. Here, I'll describe some of the different styles and materials of mobility cane that are available.

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  • An image of Dani sitting on stairs with her head down features text: Feeling like a burden: Gaining independence & asking for help
    Albinism,  Blindness & Visual Impairment,  Everyday Life,  Mental Health

    Feeling Like a Burden: Gaining Independence & Asking for Help

    October 5, 2020 /

    Feeling like a burden often goes hand in hand with having a disability, but you are not alone. There are steps we can take to ease that feeling and gain back some of our sense of independence as well.

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  • several vision aids are featured in a photo piled up. Text below reads: The blind tax: the real cost of being blind. Albinism Up Close.
    Blindness & Visual Impairment,  Everyday Life

    The Blind Tax: The Real Costs of Being Blind

    September 28, 2020 /

    The Blind Tax is the high cost of making the world accessible for a blind or visually impaired person. It is very real and very high. I'll review some of these costs in detail in the hopes that it raises some much needed awareness.

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    1 Comment
  • a black image with a double helix features text: Ocular Albinism: X-Linked and what that means
    Albinism,  Blindness & Visual Impairment

    Ocular Albinism: X-Linked & What That Means

    September 18, 2020 /

    Ocular Albinism is an x-linked variant of albinism. Here, I'll detail what that means in simple terms and how it may affect your diagnosis. I also share some important notes about accepting others' differences.

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  • a library features a graphic of a folded mobility cane and text: The white cane: History and Laws
    Blindness & Visual Impairment,  Low Vision Products,  Technology

    The White Cane: History & Laws

    August 13, 2020 /

    The white cane has a long history, but laws regulating its use and safety are fairly recent and vary by state. Here I discuss that history, laws, and the types of canes that exist for blind and visually impaired people.

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  • A collage of four images and text that reads Surviving the Beach with albinism. Images feature Dani with sunglasses and a large hat, a beach hat on a deck, Dani with the ocean behind her, and a sunset on a beach
    Albinism,  Everyday Life,  Hair & Beauty

    Surviving the Beach with Albinism

    July 30, 2020 /

    People with albinism can enjoy the beach as well as people without it, but we do need to take a few more precautions. Here, I run down some of those considerations and tips so that you can enjoy your time at the beach with albinism, fair skin, and photophobia.

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  • a graphic features a photo of Phoenix with one arm on her hip and the other under her chin. Text around it reads Community Highlights: Phoenix Simone Walter. Rising Proudly. on Albinism Up Close
    Community Highlights

    Phoenix Simone Walter: Rising Proudly

    July 23, 2020 /

    Phoenix Simone Walter is a photographer and graphic designer who also happens to have albinism. She rises above any challenges that come her way with grace.

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  • An image features two circles. One has text that says: Albinism up close Nystagmus explained: how it impacts the vision of those with albinism. The other circle is an up close view of a purple eye with white eye lashes and eyebrow.
    Albinism,  Blindness & Visual Impairment

    Nystagmus Explained: How it Impacts the Vision of Those with Albinism

    July 16, 2020 /

    Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.

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Recent Posts

  • Image featuring a cane with a roller ball tip and text: Albinism Up Close. Choosing a tip for your mobility caneChoosing a Tip for Your Mobility Cane
    In Blindness & Visual Impairment, Low Vision Products
    October 3, 2022
    Choosing a tip for your mobility cane is a very personal task, but there are some guidelines that can help you make the decision. Here, I run through the various tips, their general uses, and some general guidelines to help you choose your next cane tip. Remember, I am absolutely no orientation & mobility expert. I am simple gathering all the information for you guys. […]
  • a grey image with diagonal stripes of green, blue, white, yellow, and red features text: July is Dsiability Pride Month. Why are we proud to be disabledWhy Are We Proud to be Disabled?
    In Albinism, Blindness & Visual Impairment
    July 18, 2022
    July is Disability Pride Month! To many this may seem like an odd statement, but disability pride is about much more than being proud to be a disabled person. […]
  • The top of this image reads Quests of the Braille playing Electric Bastionland, Thursday, 20th of January 2022 at 5:30PM Eastern Standard Time. Below there are pictures of Dani Marie, Sightless Combat, Blind Temple and Jim O’Donnell. The Twitter handles for each person are @SightlessKombat @ DaniMarieAUC @Blind Temple @BrailleKnights the picture shows the location for the stream as WWW.Twitch.TV/BrailleKnightsLive Streamed TableTop RPG with Blind Creators: Let’s Have Some Awareness & Some Fun
    In Announcements, Blindness & Visual Impairment, Gaming
    January 16, 2022
    Join me in a live streamed TableTop RPG for charity and awareness beginning January 20th! Learn all about this event and how you can lend your support! […]
  • An image features a sunscreen bottle against a persons hip. Text says: Albinism Up Close. Johnson and johnson issue voluntary recall on sunscreensJohnson and Johnson Issue Voluntary Recall on Sunscreens
    In Albinism, Everyday Life, Hair & Beauty
    July 28, 2021
    Johnson and Johnson issues voluntary recall of certain aerosol sun protection products that contain benzene. […]
  • a see of colorful umbrellas features text: Albinism up close. Numberous sunscreens found to contain the carcinogen benzeneNumerous Sunscreens Found to Contain the Carcinogen Benzene
    In Albinism, Hair & Beauty
    May 26, 2021
    A new study has found 78 sun protection and after sun products that contain benzene, a known carcinogen. Here, you can find the summary of those finding, resource links, and a list of contaminated products. […]

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