Nystagmus is an uncontrollable shaking of the eyes. It occurs frequently in those with albinism. It affects the vision in various ways, but there are some things you can do to lessen its effects.
The NOAH Virtual Conference 2020 was an absolutely amazing experience for me. This post covers Days 3 & 4 as well as where the 2022 and 2024 conferences will be held.
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the second day's events.
The National Organization of Albinism and Hypopigmentation (NOAH) conference went virtual in 2020. Here is a summary of the first day's events.
Those of us with albinism need to vigilant about sunscreen application. Here, I'll outline some factors that will help you choose the best sunscreen for you and your family and application tips.
Community Highlight: Kayla Flanary is a twenty-seven year old woman with Oculocutaneous albinism. She has faced many struggles including bullying, but she is finding joy now in the midst of the struggle.
I love my white hair, but it can be a challenge to keep white. Environmental factors can lead to yellowing of the hair, but there are steps you can take to prevent and reverse this effect.
Albinism is a genetic condition with various types and symptoms. In this post, I detail the hair and skin color variations along with the eye conditions that come with albinism. I also describe how I see.
I began a YouTube channel in early May. Here are the tools I'm using and how I'm making it work with a visual impairment.
Community Highlights are coming to Albinism Up Close. These are my plans, submission requirements, and contact information. Please, contact me if you'd like to be featured.